~A glimpse into the life of a big-hearted little boy and his journey with fibular hemimelia~
Now unto him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us, Unto him be glory in the church by Christ Jesus throughout all ages, world without end, Amen. ~Ephesians 3:20-21
Friday, May 22, 2015
Grace Based Parenting because kids aren't standardized tests
Somewhere, somehow, I bought into the lies the world tells us about our children, but God is slowly doing a work in my heart to teach me the right way to see my three blessings. What the world often uses as a measurement, God never uses. I can’t find any biblical evidence of tests scores being an indication of right standing or a marker of one’s character. Yet, I’ve found myself measuring my kids by their grades or, as sad as it sounds, their SOL scores–sometimes embarrassed when they haven’t measured up –and sometimes too overjoyed when they have.
Emily asked me once is if it was bad to have thin hair because they sell shampoo to make your hair thicker and should we get some for her? An obvious indicator of the amount of times she’s heard me say, “I can’t do anything with this thin hair of yours.” Kinda makes me a bit nauseous to think that by eight you’re already convinced that even your hair doesn’t pass the test.
Why is it that we allow the machine that is the media or the department of education or anyone to determine the value of our children –the worth of ourselves?
I remember a conversation in library school between mothers who were boasting about their children and the fact that their kindergartners had never “pulled a light,” and how they’d simply die if one came home with a disciplinary note –how parents today just needed to learn to parent their children. I sat out of this one, given the fact that one of my children, not to name names, pretty much pulled a light a day for at least two years. And I wondered if I should think less of my talkative one –who typically wasn’t disrespectful, just had a lot to say –and had God not intervened, I probably would have gone home and punished him for his preschool days just because I had lost out on bragging rights in the library. If you’ve been around me much, I’m sure you know I don’t let much air fill a conversation –and I can certainly see where my kids have learned the art of conversation. But isn’t that okay? Is being quiet the only thing worth celebrating in our children? Or if you have a quiet one, one someone is always trying to pull out of her “shell” –one you’ve been made to see as odd or antisocial or somehow misfitted with the rest of the world—don’t you think there’s a place for her –a God ordained place where her quiet, reflective nature can be used.
Somehow we’ve erected this childhood idol –this straight A, rule following, college-bound, polite sports star that sometimes, if we are honest, we really want our kid to be. We want the facebook picture of the most valuable player –but what is it that we are really being taught to value? Satan always lies, ALWAYS –and he always distorts truth, ALWAYS –and we have to be good discerners to catch this subtle lie that’s invading our ears.
The one who finishes her work on time, colors within the lines, says please and thank you –sure that girl has potential, but I was that girl –and I allowed perfectionism to almost claim me on many occasions because I internalized that A’s were good –therefore, the more A’s I produced, the better I was –and the more I was rewarded with praise (from well-intentioned people) and scholarships and awards which only fed my need to keep achieving to keep being “good.”
God doesn’t have an achievement system, though-- he has a grace based parenting approach –a “my grace is sufficient for your needs” approach –a “you don’t have to work to please me” approach –a “you’re created in my image” approach –that looks a lot different that the approach the world is embracing. And I don’t want to be a part of the world. I want to be SET APART instead.
Do you know what He’s teaching me to love most about Emily? How about the fact that whatever she eats inevitably finds its way all over her face –and usually in her hair –and on her clothes. She wears one of those KoolAid grins –the kind that brings a smile to anyone’s face who sees her. She’s the kid whose teacher says, “I bet there’s never a dull moment in your house.” –and I want to embrace this –to run with this –to enjoy this –this girl of mine who knows how to live in a way that I still haven’t figured out –who enjoys each second of each day to the fullest –who’s still talking when I’m walking out of her room at night –and wakes up with this hair that has never figured out how to be tamed. Can I just love this about her –and stop worrying about spelling words and lady-like speech and just relax a bit and see what God’s going to do with this one?
And this middle one, this entertainer, the talkative light pulling one –who has endured so much more than me so far. Can I just love the fact that he corrects everything I say because he knows every random fact in the universe including when all three of the three Stooges were born and when they died and how to make Origami versions of all the Star Wars characters. Instead of pushing him to “reach his full potential,” can’t I just let him read all the corny joke books he can digest and useless information about Elvis or his fascination of the week? Can’t I just like his quick wit --that I’m sure got him in trouble the day he asked how M&Ms and cheeseballs could really help him and his classmates on standardized testing—and see how God uses all this?
And this last one, this first one, who seems so old, and so young, too –can I just like him –in his boots and jeans and t-shirt –and his pickup truck. He was the one whose blonde hair I kept in a bowl cut –wasn’t that the sure fire method of creating a prepping boy –one who would like to read and like school –and be like me and fulfill all these meaningless arbitrary expectations that I created? I’m ready to watch him now, God’s helping me –to watch him be loyal to this group of friends that he loves and to work hard outside with his hands –doing a man’s job –and to see who He wants him to be –that will so exceed what I could have ever dreamed up in this head of mine.
Can I encourage you, as he’s encouraging me –to love your little one right where they are? Can I remind you, as He’s reminding me, that slow workers sometimes do the best work –and that dawdling and doodling isn’t sinful. That it takes all kinds –and that standardized isn’t a term that applies to relationships- to real love- to God’s design.
Friday, December 19, 2014
Stillness and Real Living
I read her article this morning (click the link, you won't be disappointed), and I haven't stopped crying, but it's one of those good cries, the cleansing kind -the kind that washes away facade and leads to better living. I'm okay with that. In fact, I've been crying, too, because He loves me enough to bring me to repentance --to change me, to make me new.
It's funny how God works -though articles, people, circumstances, His Word. On Wednesday night, I had a "moment" -one of those, "What was I thinking kind" of moments after Emily, my seven-year-old won a "wacky-tacky Christmas" contest, and Ethan, my ten-year-old, huffed in the backseat because he had lost. What really occurred was that Emily let me create her "costume" -a Christmas window I crafted from a piece of foam board, some old paint, a gift bag, and a hot-glue gun. Don't let me downplay it too much --a friend told me it was "Pinterest" worthy! Anyway, Ethan wanted to create his own design, but had "crafters' block," and I strategically made him into a "Christmas bag" complete with tissue paper and bows -at the last minute (hang in there -the point will come, and it's a major one!). In the van listening to his disappointment and vow that "he never wins anything," I prayed, "Lord, help him learn to lose with grace." But what the Lord whispered back took me my surprise. He said, in the stillness of my thoughts, "They don't need grace to lose, but to live."
Grace. It's my life song -the lesson He keeps teaching me over and over, and I keep forgetting. It's the lesson that perfectionism keeps stealing from me -and today, He told me, "Pinterest worthy mom," the need to impress, to over-do, to out-do --took joy right from the fingertips of those babies. And He was so right.
I'm "that mom" -the one whose kids match on Christmas and Easter -who repainted a bit on childhood hand prints -to make the priceless pictures "just right." I'm the one who cleans for 8 hours before inviting anyone over and declares that the house is such a "mess." I'm the one who almost died, literally, when her daughter drank Kool-aid on the day of family pictures and developed an orange-ish mustache in the process. I dot concealer on scratches before school pictures and practice smiling with Ethan so that his eyes don't have too much squint. Yep, that's me -or it was.
The article I mentioned at the top -click here-was a confirmation of this lesson that He's so willing to teach me. It simply talks of family pictures -of little girls in stiff dresses and exasperated parents trying to coax little ones into sitting still in order to capture the quintessential family moment -and how such moments, such images, aren't real and fail to capture the beauty of family. The photographer, instead, prefers moments of living -moments of laughter and messes and Kool-Aid smiles and squinty grins. I looked up from the the article to see the row of picture collages on my hallway wall, and what struck me most was the stillness -the poses and the perfection of curls and matching sweaters and children lined up in a neat row. I kinda sank a little against the wall to take in the realization of what I had been missing. I thought I knew that life isn't about stillness --about getting my ducks all lined up in a row, but the pictures say that I have a lot to learn -a lot of grace bottled up that needs pouring out. I wanted to take them all down, almost ashamed of what they represent -of this part of me that needs something -even a picture - to turn out "just right."
I want to let my kids live --real lives, not scripted one. Lives where they make a bad grade on spelling every now and then because we were playing Monopoly and forgot about lists of words. Where Kool-Aid mouths are kissed and little boys make their own wacky-tacky costumes and order Elvis backpacks if that's what they want. Lives whose seeming perfectionism aren't stumbling blocks for others.
When did we fall, I fall, for such lies? --that what's best is what's still? I have read, many times, poems about holding our children's hands, of how time passes too quickly. And truthfully, I know this --I do take time to see my kids -to watch Emily's one thousandth hand stand onto the couch and to listen to Ethan's random facts about the Three Stooges and to sit next to Josh and gleam what I can from his day.
But somehow the truth -the beauty of these moments -seems drowned in a world pushing us to be something that we're not --to achieve things that we can't. Doesn't the unlined face and the unchanged body -doesn't it indicate a lack of life --and yet that's what the world demands, celebrates even. What is Satan doing here -telling us to hold to things that aren't true --to seek happiness in seeming perfection -- in a facade that doesn't really exist -when it's actually found in the mundane, the everyday, the stretch-marked bellies that held babies and sticky counters where memories were made? Why is knowing the truth so easy, yet putting it into practice so hard?
One of the redeeming photos on my wall is this black and white photograph of my dad and Josh -who was probably four at the time. They were dancing --smiling -not at the camera, but at life. That's my resolve this year -to smile at life -at the imperfection of it all -the changes that come -and to pour out this bottled up grace. Grace for mistakes and losses and wins and Kool-Aid mouths. Oh, how I need His grace today -so undeserved -but isn't that what makes it grace?
Let's help one another today -to "get it" this time -to err on the side of grace -and not let Satan take any more of our JOY!
Hebrews 3:13 -But exhort one another daily, while it is called To day!
It's funny how God works -though articles, people, circumstances, His Word. On Wednesday night, I had a "moment" -one of those, "What was I thinking kind" of moments after Emily, my seven-year-old won a "wacky-tacky Christmas" contest, and Ethan, my ten-year-old, huffed in the backseat because he had lost. What really occurred was that Emily let me create her "costume" -a Christmas window I crafted from a piece of foam board, some old paint, a gift bag, and a hot-glue gun. Don't let me downplay it too much --a friend told me it was "Pinterest" worthy! Anyway, Ethan wanted to create his own design, but had "crafters' block," and I strategically made him into a "Christmas bag" complete with tissue paper and bows -at the last minute (hang in there -the point will come, and it's a major one!). In the van listening to his disappointment and vow that "he never wins anything," I prayed, "Lord, help him learn to lose with grace." But what the Lord whispered back took me my surprise. He said, in the stillness of my thoughts, "They don't need grace to lose, but to live."
Grace. It's my life song -the lesson He keeps teaching me over and over, and I keep forgetting. It's the lesson that perfectionism keeps stealing from me -and today, He told me, "Pinterest worthy mom," the need to impress, to over-do, to out-do --took joy right from the fingertips of those babies. And He was so right.
I'm "that mom" -the one whose kids match on Christmas and Easter -who repainted a bit on childhood hand prints -to make the priceless pictures "just right." I'm the one who cleans for 8 hours before inviting anyone over and declares that the house is such a "mess." I'm the one who almost died, literally, when her daughter drank Kool-aid on the day of family pictures and developed an orange-ish mustache in the process. I dot concealer on scratches before school pictures and practice smiling with Ethan so that his eyes don't have too much squint. Yep, that's me -or it was.
The article I mentioned at the top -click here-was a confirmation of this lesson that He's so willing to teach me. It simply talks of family pictures -of little girls in stiff dresses and exasperated parents trying to coax little ones into sitting still in order to capture the quintessential family moment -and how such moments, such images, aren't real and fail to capture the beauty of family. The photographer, instead, prefers moments of living -moments of laughter and messes and Kool-Aid smiles and squinty grins. I looked up from the the article to see the row of picture collages on my hallway wall, and what struck me most was the stillness -the poses and the perfection of curls and matching sweaters and children lined up in a neat row. I kinda sank a little against the wall to take in the realization of what I had been missing. I thought I knew that life isn't about stillness --about getting my ducks all lined up in a row, but the pictures say that I have a lot to learn -a lot of grace bottled up that needs pouring out. I wanted to take them all down, almost ashamed of what they represent -of this part of me that needs something -even a picture - to turn out "just right."
I want to let my kids live --real lives, not scripted one. Lives where they make a bad grade on spelling every now and then because we were playing Monopoly and forgot about lists of words. Where Kool-Aid mouths are kissed and little boys make their own wacky-tacky costumes and order Elvis backpacks if that's what they want. Lives whose seeming perfectionism aren't stumbling blocks for others.
When did we fall, I fall, for such lies? --that what's best is what's still? I have read, many times, poems about holding our children's hands, of how time passes too quickly. And truthfully, I know this --I do take time to see my kids -to watch Emily's one thousandth hand stand onto the couch and to listen to Ethan's random facts about the Three Stooges and to sit next to Josh and gleam what I can from his day.
But somehow the truth -the beauty of these moments -seems drowned in a world pushing us to be something that we're not --to achieve things that we can't. Doesn't the unlined face and the unchanged body -doesn't it indicate a lack of life --and yet that's what the world demands, celebrates even. What is Satan doing here -telling us to hold to things that aren't true --to seek happiness in seeming perfection -- in a facade that doesn't really exist -when it's actually found in the mundane, the everyday, the stretch-marked bellies that held babies and sticky counters where memories were made? Why is knowing the truth so easy, yet putting it into practice so hard?
One of the redeeming photos on my wall is this black and white photograph of my dad and Josh -who was probably four at the time. They were dancing --smiling -not at the camera, but at life. That's my resolve this year -to smile at life -at the imperfection of it all -the changes that come -and to pour out this bottled up grace. Grace for mistakes and losses and wins and Kool-Aid mouths. Oh, how I need His grace today -so undeserved -but isn't that what makes it grace?
Let's help one another today -to "get it" this time -to err on the side of grace -and not let Satan take any more of our JOY!
Hebrews 3:13 -But exhort one another daily, while it is called To day!
Friday, February 28, 2014
Fibular Hemimelia -Scars and Grace
This little left leg, in a few weeks, will boast a new scar, somewhere next to an old one, maybe even through the old one, breaking scar tissue. This little tibia, once a bit bowed and slanted too much toward the inside of the knee is now corrected, standing straight and tall, ready for a guiding 8-plate to be removed. This femur, still a bit sluggish to cooperate, is getting an 8-plate of its own.
This little one isn't worried, not anxious, not him. He's looking forward to a nice pair of crutches. When you're six or seven, you leave surgery with a walker, but when you're nine, it's crutches, baby, and you suddenly become the third grade star --at least for a day or two!
This blogger, she's written a lot about perspective because God's granted her a bit of wisdom; given all the scars, she had to ask --and He's a gracious giver. She often wonders why He keeps giving, freely, abundantly to her --who fails and complains and wanders (and wonders). And He reminds her, quietly, gently that the gift isn't about her, isn't tied to her worth, her work, but to His.
The way an 8-plate works is by turning the leg in the right direction as it grows. (This blogger, she's crying, because all she wants is a Word from Him, and when He gives one, a clear one, she's overwhelmed by Him ... she's simply undone). We who believe, not just sign a card or raise a hand or call ourselves by His name, but we who Confess and Repent and Believe and Live, we have this guiding force within. His guiding force. His Spirit. Him. Ethan's plate was implanted, surgically, and can only be removed by cutting through skin and through bone. Our Spirit within, past skin, past bone --even the surgeon can't touch. Nothing can remove this God from His Children, nothing can separate us from His love. Who can undo the Seal of the Sealer? Not death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, Nor height, nor depth, nor any other creature (Romans 8:38-39). Paul was convinced, and this blogger, she is too. For without this promise, this grace, this unmerited favor, this love, this Saviour, she's lost. Remember the failing and complaining and wandering and wondering. Without His Spirit, she'd never find her way back. But He promised, Paul gives us another Word, he was convinced and confident of ONE thing, and this blogger, she is too: Being confident of this very thing, that he which hath begun a good work in you will perform it until the day of Jesus Christ (1:6). He is going to perform this work IN me because I can't perform it myself. He began it, He performs it. He comes back for me. It's all about Him. What does that look like, Him performing in me? Like a puppet pulling strings? Like me without a voice, without a choice? Maybe like a knee turning, straightening, a guide in the background. Sometimes it's a painful turning, but a purposeful one: For whom the Lord loveth he chasteneth, and scourgeth every son whom he receiveth (Hebrews 12:6). Paul was struck down in his sin by his God who started the work in him: ...[I]t pleased God, who separated me from my mother's womb, and called me by his grace, To reveal his Son in me, that I might preach him among the heathen, This God who has set us apart tells us: Abide in me, and I in you (John 15:4).
Strong's defines abide:
to remain, abide
- in reference to place
- to sojourn, tarry
- not to depart
- to continue to be present
- to be held, kept, continually
What's key to our abiding when we fail, complain, wonder, and wander? Simply tarry there where we are "held, kept CONTINUALLY." When we are a part of the vine, we don't have to worry about tarrying, even, for His Spirit draws us, comforts us, brings His Word to our remembrance. He won't let us leave Him. When we feel unworthy, when our hearts are weary, we are reminded: For if our heart condemn us, God is greater than our heart, and knoweth all things (1 John 3:20).
We can REST in Him, work for Him because His very Spirit compels us to do so. For, in the end, we will not say that it was our working, our praying, our witnessing, our studying that kept up secure in Him. Instead, we'll cry, "Jesus, He held us."
He receives All Glory All Praise!
Until that day, His Spirit keeps molding, turning, straightening, conforming us into His Image! Oh Glorious Day!
Sunday, October 27, 2013
Fibular Hemimelia -Celebrating Life Wonderfully Made
Psalm 139:14
King James Version (KJV)
14 I will praise thee; for I am fearfully and wonderfully made: marvellous are thy works; and that my soul knoweth right well.
I think of the little one from our little community waiting to be well enough for a new heart. And I think of his parents, waiting in a hospital room so far from their home, at times, I'm sure, wondering why. And the nine toes and shorter limb seem so pale in comparison.
It's interesting how we define perfection. What we tell ourselves we should be. What we try to impose on our children. Ten fingers and nine toes equals less than expected. Less than expected leads to doubts. "What did I do wrong?" quickly becomes "Why did He do wrong?"
Yet, the Truth of His Word declares that the Works of His Hands are "Wondrous" and "Worthy" of "Praise."
What happens when we stop Asking Why and start Embracing Why?
On the way to church Wednesday, he feel asleep in the car, tired out from a weekend of 104 fevers, his face still pale and drained. I stared at this little face, the perfection of smooth, eight-year-old skin, and wondered about the Why.
Today, on his ninth birthday, I still wonder. About the nine toes and the recurrent fevers, the surgery scarred leg with surgeries yet to come.
This morning, sitting on the back pew with his three best buddies fresh from a sleepover, he answered the alter call, walking up the aisle with a still less than expected gait. On his return, he whispered to the friend on his right, "Have you been saved?"
I smiled a bit. He answers even our wonders. He know that we are dust. He lavishes grace and fills a mother's heart, scarred from wondering and watching, with peace.
What will this nine-year-old become that this is necessary? Will he minister to those society rejects? Will his hand one day reach out to the fever stricken child or the amputee? Will he testify of God's Provision, of His Goodness, of His Mercy and Grace?
This afternoon, he visits his great aunt Lynn, pained with cancer, unable to eat or to speak. I watch her sleep and remember the letters and sweet cards, sent to Baltimore to him and to his sister, both eager to hear from home. She was faithful to write to them each week and they have been faithful to pray for her each night. Today her mother, his great-grandmother, sits at her bedside, grieved beyond words. And I wonder why. Why should a mother outlive her child? Why so many burdens, so many burdened?
I think of the little one from our little community waiting to be well enough for a new heart. And I think of his parents, waiting in a hospital room so far from their home, at times, I'm sure, wondering why. And the nine toes and shorter limb seem so pale in comparison.
And I recall the command:
Philippians 4:4
King James Version (KJV)
4 Rejoice in the Lord always: and again I say, Rejoice.
And I think it's too hard. This is too much to ask. To rejoice always and again rejoice. And I reread because I think it's too hard, and in the rereading, I see the Lord. He is in the middle of the Rejoicing. Do you see Him? Can you see Him in the middle of the verse, in the middle of the circumstance, in the midst of your life? Are you looking closely enough or are you stuck in the difficulty? He isn't asking you to rejoice in the difficulty, He is asking you to rejoice in Him.
We can find Him, He reassures, IF we seek for Him with all of our hearts (Jeremiah 29:13)? If He knows us, that we are prone to wandering, then the Why's may be the only way to bring us to the SEEKING, and the SEEKING is the only way to bring us to HIM.
He humbles me, then, giving me Why's, leading me to Himself, leading me to lead you to Himself.
Will you Praise Him with me today, for fearfully, wonderfully orchestrating ALL things to bring You to Him? Will you Praise Him today who has prepared places for us --here and for all eternity!
Tuesday, July 9, 2013
Purpose
Isaiah 43:7 -Even every one that is called by my name: for I have created him for my glory, I have formed him; yea, I have made him.
I know what it is --our purpose in being here -on Earth, in southwest Virginia, in Dot, on Fields Drive. It's to glorify Him. I get that. I cling to that truth, often losing it in the busyness of church and gymnastics and guitar lessons and baseball camp and spilled Cheerios. I fight my way back to that truth at night when I wonder what I look like to Him, here in Dot, when the gymnast and the baseball player and the guitarist -and their dad -are asleep and it's just me and Him and my works spread bare before Him. Glorifying --is that how I look --to Him?
Because it's not often how I feel. Selfish, maybe, or tired. I think that's how I must look. Anxious -even anxious to please -is the face that I wear most nights --at least if I'm the one who's looking and judging and measuring up. I do a lot of self measurement, and my ruler leaves little room for grace.
I think of her, eating ants caught by her bed. Ants caught by her bed. And I think of my sweet girl, in her pink room, baby dolls nestled by her side. And I wonder why --but mostly HOW or WHAT.
What does YOUR glory look like? and HOW can it be fulfilled in me? How can I reach her and teach her to think of more than herself?
We pray for the Lord to give us a great work to do --a real work --a work that wells up inside us and spills out into the world. And we wait, and I wonder, and I measure, and fall short.
And we give a ride to the woman at the grocery store who was on her way home with bags and no car. And we promise to return to mow the grass that reaches up to her window sills. And Emily asks if the woman is poor, and I say, "Not today." And the work wells up and spills over.
And we pray to be spilled for Him who spilled Himself freely for us, to set us free.
Thursday, April 18, 2013
and the Lame shall walk
My Sunday School ladies and I are
making our way through Nehemiah, noting his faithfulness as he answered God’s
call to rebuild the walls of Jerusalem.
God gave him a vision –compassion for His people who were hurting,
living sinful lives behind unfortified walls.
Nehemiah, if you recall, was the cupbearer to King Artaxerxes, living in
Shushan the palace in Persia. In fact,
he had lived his whole life in Persia, his family more than likely not
returning to Jerusalem 70 years earlier when the Jews were granted freedom to
return from exile. Yet, Nehemiah was a
Jew and Jerusalem was the home of his people; in fact, when his brother brought
him word of the great affliction of the people who were left in Jerusalem and
their broken down wall and burned gates, he wept, fasted, and prayed. What he does next, however, is worth our
attention. He gets up, God answering his
prayers by telling him of the work he is to do, asks Artaxerxes for permission
to work on the wall, and goes to work, enlisting the help of everyone –from carpenters
to apothecaries to priests to the daughters of the sonless men. In 52 days, the wall is rebuilt, and Nehemiah
begins his greater assignment –bringing the people back to the law which brings
them to repentance.
In a world in which there is Steubenville
and Gosnell
, we question How and Why and seem to forget that it’s all Sin and broken walls
and burned gates and afflicted people.
And we wonder at the state of the world and gawk at headlines and make
status updates of our “thoughts being with the hurting.” Maybe we utter prayers. Maybe we weep. Do we fast?
Do we listen for His voice? Do we
rise to the calling of the wounded, His People who are perishing who have
forgotten Him. Do we take them back to
the Word, to the Living Word, to the One WAY?
Do we help them fortify walls and rebuild burned gates?
In Acts 3, we read of another gate,
this time an entrance to the temple within the walls of Jerusalem.
“2And a certain man lame
from his mother's womb was carried, whom they laid daily at the gate of the
temple which is called Beautiful, to ask alms of them that entered into the
temple."
This story, of the lame man, grips
me. Maybe I see my little boy,
challenged from his mother’s womb, born 2000 years before external fixators and
shoe lifts and 8-plates and the Sinai hospital, sitting at that gate, carried
there on the arms of friends. Maybe I
see him, limping and disgraced, cup lifted to those headed to the temple. Maybe I pray that someone looks at him,
really looks at him, before entering that gate called Beautiful and leaving him
hurting and alone. Maybe I pray that I
wouldn’t have left him there lame and broken by sin. That I would have SEEN him, would have
realized that he was one of HIS children.
Maybe I pray for eyes to see ALL HIS CHILDREN to carry them to the gate,
to the Christ, who alone can HEAL ALL WOUNDS.
That when I read of Boston
and Texas,
I get off of facebook and put my face to THE BOOK, my HEART to the heavens, and
MY HANDS to SERVICE -- to the carrying of the lame to the KING, maybe not in
Boston, but here, next door, next pew, next classroom, next to me on the bleachers
at the JV game.
Peter and John meet this lame
man. Not only do they look at him, they
tell him to look at them. And they
perform a miracle in the Name of the MIRACLE MAKER: “In the name of Jesus Christ of Nazareth rise
up and walk.” They extend their hands
before he can even answer and raise him on his feet –“immediately his feet and ankle
bones received strength.” Do you need
strength to stand today? Are your feet
and ankle bones taxed with anxiety, with fear, with guilt, with remorse, with
doubt? There is ONE whose HAND extends to
YOU. He will give you strength. Are you HIS EYES today? Are you carrying, extending? Or are you on your way to worship, yet never
see?
One day this youngest boy of mine
will stand in a kingdom with feet and ankle bones strengthened and whole, with
a praise for HIS KING that I, with ten toes and aligned tibias and femurs,
cannot fathom. His weakness here will
make his walk through that gate called BEAUTIFUL there all the more sweet. While we are HERE, we must drag ourselves to
Him, wall restorer, gate fortifier, and carry as many with us as outstretched
arms can hold.
Saturday, February 16, 2013
FIERY TRIALS
REJOICE. PRAY. GIVE THANKS. HOLD FAST.
This little stash of make-up isn’t an ad for Estee Lauder or even a look at what it takes to make me presentable in the morning. Its significance goes beyond covering up imperfections, and instead points to the ending of a month of difficulty. As I put away the mascara and the blush this morning, I thanked God for His unending mercy and grace, for the fact that I was putting this away in my own bathroom this morning and not in the hospital room of a sick little boy. One day, a little over nine years ago, I took a little boy to the ER because of a severe headache, and I didn’t come back home that night. Instead, I frantically called my mom in the hospital parking lot and spoke words that haunt her to this day, “Josh has a brain mass.” That night long ago ended with an ambulance ride, an IV, and an MRI. A few days ago, I was afraid of reliving that nightmare again; I was packed and ready.
When the doctor tells you that your son’s blood tests are abnormal and that no conclusive reason can be found for his recurrent fever (19 days of fever in one month) and that the next logical step is a trip to St. Jude to rule out leukemia or lymphoma, you stop breathing, your chest seems too weighted down with fear to move in the up and down rhythm required in simply breathing. The colors of life seem to diminish.
Let me back up a bit.
Ethan has a rap sheet of illnesses, fibular hemimelia obviously being a major one, but he has also been diagnosed with PFAPA, recurrent fever. About every 4-5 weeks, starting around age five, he had a fever for about three days with no other symptoms. This fever proved frustrating and was accompanied by many doctors’ visits and negative strep, ear infection, flu, etc. tests. Finally, an infectious disease doctor gave us the PFAPA diagnosis along with a prescription for tagamet and prednisone, and we have seen the fevers diminish greatly. This month, however, his “normal” fever went beyond the typical PFAPA symptoms and seemed relentless in its attack of his body, escalating to 105, sometimes with a strange rash. Again, we were met with testing for the typical kids’ junk: flu, strep, mono, etc., and all proved negative. Then, when the fever keep returning, he was tested for the next stage of diseases: lupus, rheumatoid arthritis, Kawasaki syndrome, etc. –all of which came back negative. After infectious disease and autoimmune disorders, the next step was oncology.
Let me back up a bit.
In the ten years since Freddie and I have been married, we have endured Josh’s brain mass and subsequent surgery, Freddie’s own brain mass and surgery, Ethan’s birth, fibular hemimelia diagnosis and external fixator surgery, Emily’s birth that literally tore my uterus, resulting in blood transfusions and a near mental breakdown.
Let me pause for breath and be real honest.
Sometimes I get hung up on the list. Sometimes it makes me angry. Sometimes I look at others and wonder why their lists seem much shorter in comparison. Sometimes I wonder what HE is thinking.
Let me tell you what I’ve learned.
I’ve learned that we all have lists, and relatively speaking, they’re all difficult to bear.
I’ve learned not to bear mine alone.
I could write and write about the things God has taught me through my list, but I’ll stick to the latest lessons with this post. This time, He taught me about the Body, the Word, and Grace.
THE BODY
My dad danced when we found out that what doctors suspected was a malignant brain tumor turned out to be a malformed blood vessel in Josh’s brain. My mom cried when I called to say, “No leukemia, no cancer.” Today, a friend at little league sign- ups could not have smiled any brighter when I responded to his hesitant questions, “Ethan’s fine.” My church family and friends joined me last night (and nine years ago) in my praise of the God Who Heals. My children’s victories have been their victories, too. Through prayer, we unite and become instruments in God’s sovereign plan. God knows we need one another. In fact, Christ’s final prayer before the cross was that we be as One.
John 17: 9 I pray for them: I pray not for the world, but for them which thou hast given me; for they are thine. 10 And all mine are thine, and thine are mine; and I am glorified in them. 11 And now I am no more in the world, but these are in the world, and I come to thee. Holy Father, keep through thine own name those whom thou hast given me, that they may be one, as we are.
We are His hands, and this month, those hands enveloped me in prayer and encouragement.
THE WORD
A godly friend encouraged me to surround myself and Ethan with the Word of God. I knew that the Word was powerful, but during this trial, I learned to wield the sword. I printed verses of healing and put them in my pocket, in Ethan’s room, and even under our mattresses. I opened a Bible to these verses –and sat it opened beside his bed.
Mark 1: 29 And forthwith, when they were come out of the synagogue, they entered into the house of Simon and Andrew, with James and John. 30 But Simon's wife's mother lay sick of a fever, and anon they tell him of her. 31 And he came and took her by the hand, and lifted her up; and immediately the fever left her, and she ministered unto them.
I told Ethan with great confidence that satan could not cross over the Word to reach him in his bed, and I prayed, cried aloud to the Lord, to lift Ethan up and to heal him of his fever as He had healed Simon’s mother-in-law. And then I wondered, why I wasn’t crying for my other children, my marriage, my home with verses raised and repeated back to the God who spoke them.
GRACE
This past week, the week of Valentines, gave me a glimpse of the One who calls me His Beloved. On the day that the packet from St. Jude came in the mail, before I could open the envelope, I first had to plow through cards and letters sent from my church family and friends, full of verses of encouragement and promises of prayer and healing. The Lord sent a mailbox full of love notes, promises made and kept. He saw me in my pain and in my tears, and He made sure that I saw Him. On the way home from school a few days before the appointment, Josh and I saw a beautiful rainbow, shining through a few drops of rain. Oh, how I marveled at the beauty of that bow, its otherworldliness, almost unreal in its appearance. And how my heart recalled the promises of the Lord, promises to work things to my good, to never leave me nor forsake me, promises of the availing of my prayers despite the rain.
God is Real. He sent real cards. He put our family on the hearts of a group of students who gave a sweet card and 86 dollars, mainly in ones. He put our family on the hearts of another family with small children who sent drawings and 40 dollars for gas and food. He put our family on the heart of a sweet man in our church who folded a 100 dollar bill into my hand after the church gathered as one to pray for Ethan. Did I mention that Ethan’s ER trip and CT scan cost $200 dollars beyond what our insurance would pay and that when Ethan picked the Golden Corral for his celebration lunch –can’t resist the chocolate fountain-- it cost $27 dollars? He paid our bills, really.
Let me keep praising.
We left St. Jude with negative test results. We still aren’t sure what caused Ethan’s fevers or if his future holds other months of sickness and uncertainty; we have a few possible causes, such as Juvenile Rheumatoid Arthritis, but no definitive answers. We hold to the real possibility as well that the Lord has seen fit to deliver him completely from this sickness.
What is True.
What we do know is that God sees us, He provides for us (to the penny of our every need), He loves us, and He intends our “lists” to prosperous us and not to harm us. Please re-read the verse that heads the blog. Praise be unto His name forever!
1 Thessalonians 5:
16 Rejoice evermore.
17 Pray without ceasing.
18 In every thing give thanks: for this is the will of God in Christ Jesus concerning you.
19 Quench not the Spirit.
20 Despise not prophesyings.
21 Prove all things; hold fast that which is good.
22 Abstain from all appearance of evil.
23 And the very God of peace sanctify you wholly; and I pray God your whole spirit and soul and body be preserved blameless unto the coming of our Lord Jesus Christ.
shameless pictures of their cuteness
Subscribe to:
Posts (Atom)


