Pizza Party at the Patz house ... thanks to a few Jewish ladies in the community who bring pizza once a month in the summer. The ice cream truck is coming on Wednesday along with tie-dying T-shirts. Ethan and Emily are looking forward to that.
By now, Ethan's pain level is at virtually zero. He complains when we touch his leg or have to move it, but the medication seems to keep his pain at bay. Tonight, I tried stretching the intervals between his medication ... from four hours to five which probably wasn't the smartest idea (but one the nurses said we needed to do after leaving the hospital), given that he started therapy today. He complained a lot and had a few tears before he finally settled down for bed.
Yesterday he managed a few steps from the bed to the wheelchair ... but today he has progressed to walking down the hall! Way to go Ethan. AND he has his little cheerleader who follows him down the hall, saying, "Great job, Ethan. You're doing it!" What a great sister. With all the attention that he is getting, all that she has requested is to be carried "like you carry Ethan." So, she gets carried from the bathroom to the bed, too. Easily appeased!
We're learning that life with a wheelchair has its challenges as well as life with a child who can't walk! We've come up with some creative adapting ... hence the following pictures:
I'm glad they include the arrow to tell us which direction to turn lol! Can you imagine turning it the wrong way? Well, Freddie had to get the wrenches out that we were given, too. The major bolts have to be checked daily, and one was working its way out. Ethan screamed a bit when I said, "Get the wrench," but we were both laughing later! The nurse who taught us how to adjust the fixator made a joke and said, "If the fixator doesn't need adjusting, then you can work on your Toyota ... because the wrenches are metric."
Okay, one last scary image. This is the fixator minus the sponges. It is still very intimidating to clean the pin sites ... even in the shower. Today, I wanted to call my mom, the nurse, over so that she could look at a few places ....